Jacqui's Digital Story

Jacqui, a Heart Beats storyteller, smiling with another woman outdoors — representing lifelong friendship, support, and her journey of living with congenital heart disease.

Wilbur

“My story is about my visit to a Cardiology lab. After I met Dr. John Tyberg in 2018 at a Libin Cardiovascular Fundraiser, he invited me to his lab to see what they do there. It was an experience I’ll never forget. The cardiac team that day was testing how penicillin reacts to the heart of a pig – as pig hearts are very close to humans.”

~ Jacqui

 

Jacqui’s ACHD Journey

Conditions: Ventricular Septal Defect – Stenosis of the Pulmonary Valve, Hole in the Septum.

Years Since First Surgery: 48

Number of Surgeries/Treatments: 6

  1. Age 6

    • Surgery: Open Heart Surgery

    • Location: Toronto Sick Kids Hospital, Toronto, ON, CA

  2. Age 31

    • Surgery: Open Heart Surgery – Replacement of Pulmonary Valve with Porcine Valve

    • Location: Mayo Clinic, Rochester, Minnesota, US

  3. Age 39

    • Surgery: Pacemaker Install - First Pacemaker

    • Location: Foothills Hospital, Calgary, AB, CA

  4. Age 45

    • Surgery: Pacemaker Replacement - Second Pacemaker

    • Location: Foothills Hospital, Calgary, AB, CA

  5. Age 52

    • Surgery: Pulmonary Valve Replacement via Catheter

    • Location: Mazankowski Alberta Heart Institute, Edmonton, AB, CA

  6. Age 54

    • Surgery: Pacemaker Replacement - Third Pacemaker

    • Location: Foothills Hospital, Calgary, AB. CA

 

Telling Stories That Inspire: A Digital Storytelling Journey

A digital story is a short, impactful video that combines the storyteller’s voice with thoughtfully chosen images and music, creating a compelling narrative in just three to five minutes.

Jacqui, along with five other individuals living with Congenital Heart Disease, participated in a 20-hour, multi-day workshop where they crafted their personal digital stories.

 

Jacqui created “Wilbur” during a Digital Storytelling Retreat for adults with Congenital Heart Disease (CHD).

This workshop was led by Common Language DST facilitators Kristy Wolfe and Kristina McGuire, in collaboration with Heart Beats Children’s Society of Calgary and with funding from the Western Canadian Children’s Heart Network.

To learn more about this inspiring digital storytelling workshop, visit Kristy Wolfe Stories.

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Cheyenne's Digital Story

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Vittorio's Digital Story