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Here to Support You

You may feel as though your whole world has turned upside down when you discover that your child has a heart defect. You are not alone.

Heart Beats was formed over 25 years ago to assist families in Southern Alberta who have a child with congenital heart disease. You can access:

  • One-to-One Support
    Connect with families who share your experiences. Parent volunteers are available to provide you with support after diagnosis, before surgery and at other times during your journey. 
  • Group Support
    Share information and discuss the challenges of growing up with a heart defect at monthly Mom's Coffee Hour and "Just for Dads". These groups meet in a casual setting to discuss the challenges of raising children with CHD. Please see our "Upcoming Events" for more details about these support groups.
  • Peer Support
    For fun activities once a month throughout the school year, tweens and teens can join Offbeats. The focus is having fun with peers who know what it is like to have a heart defect. Younger children can play with their peers at Heart to Heart meetings and during the various family gatherings throughout the year.
  • Information & Resources
    Keeping the Beat is a newsletter that provides you with the latest information regarding pediatric cardiology, resource suggestions, personal stories, and upcoming events. Our Facebook page keeps the community in the loop with news and updates.  Heart Beats also supplies "Heart & Soul: Your Guide to Living with Heart Disease" information binders and DVDs which are available through the ACH Cardiology Clinic.
  • Family Gathering and Social Events
    Celebrate Congenital Heart Defect Awareness Week (February 7-14) with the Annual Heart Beats Family Event or attend our annual Christmas party. These, along with other events throughout the year, give your family an opportunity to connect with others who have had similar experiences. Check out our current newsletter for details of our upcoming events.
  • Financial Support
    Heart Beats provides financial assistance to families who must travel to Edmonton for their child's surgery and to families experiencing difficulty meeting expenses related to their child's heart defect. For more information about financial assistance, please speak with one of the nurses in the Cardiology Clinic at the Alberta Children's Hospital.

News and Events

Heart to Heart
Heart to Heart is open to all parents of children born with congenital heart defects (CHD). more...

Offbeats
This fun, activity-based group provides an opportunity for youth aged 10-17 years to come together in an informal setting... more...

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Disclaimer: Any personal opinions/comments expressed in this website are not necessarily those of the Heart Beats board of directors. Submissions for the website and newsletter will be accepted, however we reserve the right to publish in whole, in part or not at all. Remember your best source of medical information is always your physician.